Life just keeps rolling doesn't it? I wake in the morning and hit the floor running. Some days I wonder as I try to pry my eyes open what will the day bring, will it be a good day, will the kids try to drive me crazy fighting over who did what? Will I walk through my day feeling scattered or blessed. In my life I find one thing to be true. No matter what life will just keep rolling.......
There are days when I think I may explode from the sorrow I feel for too many families..... cancer, SMA, surgeries, broken hearts... their days continue to roll too. Fear, grief, and pain.... I want so much to be a help, our lives have been right there in the trenches too. When we lost our sweet baby Mackenzie I truly thought I would just roll into a ball and stay there... You see we had just slid through our days being "good" keeping ourselves inside our own little box. Not really worrying about the lives of others. When I lost her my world was upended.
You see Mackenzie was my wake up call...... she was my angel, she still is. She keeps me grounded and always carrying for others. Because of her I "happened" upon the video that introduced me to the horrors of SMA, and connected me with some awesome families that dealt with the loss of their babies too soon, and some that are fighting to rid their children of the cancer that threatens to steal their children. She has guided my path as we opened our little store and given me a heart to live outside myself.....
After being told by someone that "you give away too much" I got into my car and turned one the radio. Matthew West's My Own Little World came spilling out.... I literally cried as I drove along listening to the words of the song. God doesn't always tap you on the shoulder sometimes he hits you with a ball bat. I KNOW we are doing exactly what he wants us to. I know that I will spend each day trying to do more.
SMA has impacted my life is a crazy way. Nobody in my family has had SMA, none of my friends have children with SMA. But, I have come to respect and be inspired by the families that fight the battle everyday. The children..... oh the children, they are so incredible. They are so bright, they live in a world that restricts their movement. They need help to do most things but they are the most brilliant inspiring kids. One look into their eyes and I know I need to do more. Winter is a scary time for children that have SMA. So many germs, so many illnesses, hospitalizations and those lead to more trouble. To date just in the month of January 9 children have died......... gone. How can we all not be tossing every bit of spare change to research for a CURE!??!
Easy math tells me that SMA will knock at the door of someone I know soon. If that is so then it will knock on the door of someone you know too.... think we need to find that cure?? 1 in 40 people are carriers of the disease.
Friday, January 28, 2011
Wednesday, January 12, 2011
Cowabunga!!!!!!!!!!!!
Well, first let me say I am doing quite the awful job of posting once a week in 2011! Gosh, You would think I could pull it together, life is so crazy and I am trying to catch it! Does that ever happen.... do you ever catch up?
In an effort to "enjoy" more and not allow time to slip away we have set up a standing "ski" day this winter. Monday is Kendall's dance class, Tuesday is ski day and Wednesday is piano for the boys and church. Thursday, Friday, and Saturday are flex days. Enjoy the following pictures of our ski days!
For the last week we have been singing praises to God. My friend Racquel and her husband Jonathan welcomed adorable twin babies to the world! They are tiny, born by c-section at 34 weeks, these babies have been prayed and longed for by this sweet family. Sweet Noah and Lucy just might be the luckiest babies born in a long time. I have been blessed to visit them a couple times and they are so precious! When it was time to discharge Racquel they found out that the hospital has a policy that allows her to stay at the hospital in her room until the babies can be released! Great news with the wintery weather and slippery roads.
big prayers for the Stewarts and the Flemmings.... (sweet Bennett gets to come home next week!)
In an effort to "enjoy" more and not allow time to slip away we have set up a standing "ski" day this winter. Monday is Kendall's dance class, Tuesday is ski day and Wednesday is piano for the boys and church. Thursday, Friday, and Saturday are flex days. Enjoy the following pictures of our ski days!
For the last week we have been singing praises to God. My friend Racquel and her husband Jonathan welcomed adorable twin babies to the world! They are tiny, born by c-section at 34 weeks, these babies have been prayed and longed for by this sweet family. Sweet Noah and Lucy just might be the luckiest babies born in a long time. I have been blessed to visit them a couple times and they are so precious! When it was time to discharge Racquel they found out that the hospital has a policy that allows her to stay at the hospital in her room until the babies can be released! Great news with the wintery weather and slippery roads.
big prayers for the Stewarts and the Flemmings.... (sweet Bennett gets to come home next week!)
Saturday, January 1, 2011
2011 is here!?!?!
How did that happen? Another year just slipped under the rug, a year full of activities and memories... Last night I packed up 4 of our 5 kiddos and drove them the 2+ hour drive to my parents house. You see, last night was the infamous BIG party! My parents have been hosting a kids only New Years Party for almost 30 years! 30! They invite all the grandkids and any of their friends, any of their friends. They spend the days right after Christmas until December 30th preparing for this no holds barred, no rules, night of fun! Well, atleast thats what I hear.... as an adult I am not aloud to enter and be a part of the fun.
I then hop in the car and drive 2+ hours home and get ready for our "party". Tim picks up wings for him and chinese for me. We sit and watch a movie and sometimes even fall asleep. This year we actually missed the ball drop, yep, we got engrossed in the movie and missed it totally. But you know what 2011 came anyway.....
Then today I got up hopped back in the car and drove the 2+ hours back to Mom and Dad's to have our traditional New Years lunch. We all had a great time and once again Mom and Dad outdid themselves, love love love to keep traditions!
Back in the car and head home..................... ugh! the only bad part is that darn car thing!
I then hop in the car and drive 2+ hours home and get ready for our "party". Tim picks up wings for him and chinese for me. We sit and watch a movie and sometimes even fall asleep. This year we actually missed the ball drop, yep, we got engrossed in the movie and missed it totally. But you know what 2011 came anyway.....
Then today I got up hopped back in the car and drove the 2+ hours back to Mom and Dad's to have our traditional New Years lunch. We all had a great time and once again Mom and Dad outdid themselves, love love love to keep traditions!
Back in the car and head home..................... ugh! the only bad part is that darn car thing!
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